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Reading: The Future of Patient Engagement in the Governance of Shared Data

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Commentary / Editorial

The Future of Patient Engagement in the Governance of Shared Data

Author:

Carolyn Petersen

Mayo Clinic
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Abstract

Background: The emerging health care system increasingly values patient engagement and shared decision-making between patients and their providers. The practice of these values is gaining importance as the patient-centered medical home model and personalized medicine come into greater use.

Opportunity for Improvement: Exploration of patient preferences about personal health data use for research and quality improvement is a fundamental element of the provider-patient relationship. Giving patients an explicit opportunity to discuss their options about use of their data and implementing a process that allows patients to receive desired communications about how their information is used can help build patient trust, a requirement for successful care partnerships.

Practice Advancement: Working to change organizational cultures that exclude patients from participation in important decisions related to personal health information use promotes a strong patient-provider relationship and, ultimately, lays the foundation for improved health care through expanded use of patient data.

How to Cite: Petersen C. The Future of Patient Engagement in the Governance of Shared Data. eGEMs (Generating Evidence & Methods to improve patient outcomes). 2016;4(2):6. DOI: http://doi.org/10.13063/2327-9214.1214
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Published on 29 Mar 2016.
Peer Reviewed

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